Adventure with Optune GioTM

By: Craig, Optune Gio patient

Here’s how

After I was diagnosed with GBM, I immediately decided that I was not going to give up any activity without an earnest and persistent effort to continue to do what has always been good for my body, mind, and soul.

 

I have been active my entire life. So, when it came to using Optune Gio, I thought about how I would be able to stay active and do what I love.

 

Here are my “hows” and “whats”:

 

Blue light: on    Heart rate: up    Stress level: down

My first activity objective was to get out and walk every day. Once I formed the habit of wearing a hat anytime I was outside and carrying at least one extra battery, I worked up to walking about four to six miles as briskly as possible. And I always used a backpack or a lumbar pack to carry Optune Gio.

 

Oh, and remember to talk with your doctor before engaging in physical activity! Make sure your exercise is doctor-approved before you take off.

 

Next up, every other activity I enjoy:

  • Traveling by plane, train, and automobile to visit friends and family, I bring Optune Gio along for the ride.
  • Biking, which I do with Optune Gio on my shoulders in my backpack.
  • Skiing, which I also do with Optune Gio in my backpack.
  • Weight training, which I do with Optune Gio close by.
  • Hiking with Optune Gio in my backpack.
  • Ice hockey, which I do with my backpack off and my cord tucked into my pants.
  • Home repairs and chores and cooking.

 

At this point, I kind of consider myself a pro at device placement. But though I’ve had to change the way I do most of these activities, I’ve still been able to find enjoyment with them—even if it does require a bit of creativity.

 

Here are pics of me doing my favorite things!

The great outdoors with Optune Gio

When embarking on hiking or camping trips, Optune Gio might feel like a whole lot of extra weight.

 

Here’s what works for me: A lightweight hiking backpack with chest and abdomen straps sized to fit Optune Gio.

 

Things that are handy for your head: Wider hats or helmets, skull caps, light runners’ hats without mesh (to let the sun in), bandanas, and flexible cooling packs.

 

Sometimes it also helps to have: A large umbrella to shade my backpack and me from the sunlight or protect the device in the rain, a large rain jacket and poncho that can cover Optune Gio, and a dry bag (for water activities).

 

When it comes to arrays

I always have additional supplies prepared. I also pay attention to gel and contact integrity. I use a comfortable, sunlight-blocking hat over a moisture-wicking skullcap to keep my change schedule at about two to three days.

 

When it comes to percentage numbers, compliance is an average. For me, that means it comes with credits and debits. I seem to be at about 90% usage per month.

 

Activities reserved for change days (when I’m not using Optune Gio) only: running at the highest pace I can manage, swimming, golfing, or any activity that makes me sweat a ton and may cause the arrays to become wet.

 

The spirit of adventure

Mindset Matters. I accepted that some activities would have changes in intensity or duration in order to maximize my time on Optune Gio, but I remained patient with myself as well as the device to find what worked for me. It’s easy to become frustrated when dealing with extra weight. But with enough patience and adjustment, I was able to keep doing a few of the things I’ve always loved doing.

 

Some of my favorite activities weren’t ended by Optune Gio. But some were. And the others required quite a bit of tweaking to get just right.
Finding that perfect balance required persistence, determination, and plenty of laughter—at myself, mostly, when my ideas failed. But while a few of my inventive solutions blunder and backslide, my excitement for exploring nature and exercising only keeps evolving—even if I am hauling a few extra pounds.

Getting out for a bike ride

Climbing in Muir Woods

Hitting the slopes in Lake Tahoe

Golfing

©2023 Novocure GmbH. All rights reserved. Optune Gio and Novocure are trademarks of Novocure GmbH. US-OPG-00129 v1.0 November 2023

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Important Safety Information
 

What is Optune Gio® approved to treat?

Optune Gio is a wearable, portable, FDA-approved device indicated to treat a type of brain cancer called glioblastoma multiforme (GBM) in adult patients 22 years of age or older.

Newly diagnosed GBM

If you have newly diagnosed GBM, Optune Gio is used together with a chemotherapy called temozolomide (TMZ) if:

  • Your cancer is confirmed by your healthcare professional AND
  • You have had surgery to remove as much of the tumor as possible

Recurrent GBM

If your tumor has come back, Optune Gio can be used alone as an alternative to standard medical therapy if:

  • You have tried surgery and radiation and they did not work or are no longer working AND
  • You have tried chemotherapy and your GBM has been confirmed by your healthcare professional

Who should not use Optune Gio?

Optune Gio is not for everyone. Talk to your doctor if you have:

  • An implanted medical device (programmable shunt), skull defect (missing bone with no replacement), or bullet fragment. Optune Gio has not been tested in people with implanted electronic devices, which may cause the devices not to work properly, and Optune Gio has not been tested in people with skull defects or bullet fragments, which may cause Optune Gio not to work properly 
  • A known sensitivity to conductive hydrogels (the gel on the arrays placed on the scalp like the ones used on EKGs). When Optune Gio comes into contact with the skin, it may cause more redness and itching or may rarely cause a life-threatening allergic reaction

Do not use Optune Gio if you are pregnant or are planning to become pregnant. It is not known if Optune Gio is safe or effective during pregnancy.

What should I know before using Optune Gio?

Optune Gio should only be used after receiving training from qualified personnel, such as your doctor, a nurse, or other medical staff who have completed a training course given by Novocure®, the maker of Optune Gio.

  • Do not use any parts that did not come with the Optune Gio Treatment Kit sent to you by Novocure or given to you by your doctor
  • Do not get the device or transducer arrays wet
  • If you have an underlying serious skin condition on the scalp, discuss with your doctor whether this may prevent or temporarily interfere with Optune Gio treatment

What are the possible side effects of Optune Gio?

Most common side effects of Optune Gio when used together with chemotherapy (temozolomide, or TMZ) were low blood platelet count, nausea, constipation, vomiting, tiredness, scalp irritation from the device, headache, seizure, and depression. The most common side effects when using Optune Gio alone were scalp irritation (redness and itchiness) and headache. Other side effects were malaise, muscle twitching, fall and skin ulcers. Talk to your doctor if you have any of these side effects or questions.

 

Please click here for the Optune Gio Instructions For Use (IFU) for complete information regarding the device’s indications, contraindications, warnings, and precautions.

Novocure Websites

This website is intended for people seeking information on Optune Gio.

On this site, patient and healthcare professional videos as well as all images labeled Optune Gio users, caregivers, or healthcare professionals depict actual patients, caregivers, and healthcare professionals.

All other depictions of patients and caregivers are actor portrayals. Patient images reflect the health status of the patients at the time each photo was taken.

 




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US-OPG-00063 v4.0 March 2025